Why Did Momma Pee on the Floor?

Why did Mama pee on the floor? Not exactly something you expect to hear your 11 year-old ask your husband. Embarrassing to say the least.

It all started with a perfectly innocent family game night. I didn’t even realize that I needed to go to the bathroom. I started laughing, one of those good belly laughs. I was so enjoying my family time. Then the dam broke and it was like the flood gates had been opened. I couldn’t move. The sound was deafening as it hit the hardwood floors. I got up as soon as I could and changed my clothes. The boys were stunned, still sitting at the table in silence when I returned. I began cleaning and mopping the floor. Tears were running down my face.

My husband said “It’s okay baby.” I shook my head no. Jake said “Well, I guess that’s a wrap for family game night huh?!?” I giggled and said yeah. Zack chimed in “Probably not a good idea to get her laughing again!” I knew what they were doing. They were pulling from my bag of tricks. They were both trying to turn an uncomfortable situation into something that would divert my focus and make me smile again.

I was aggravated because I had been trying to get help. Each time I met with my neurologist, I mentioned my bladder issues. The frequent infections, the nocturnal bladder, the trouble urinating at times, then unexpected accidents, spasms, etc. He told me bladder issues had nothing to do with MS. He referred me to one of the best urologists in town who put me through the whole gamut of testing. He thankfully ruled out cancer or Interstitial Cystitis. He said “You have a typical MS bladder and I see it often. However, I’m not a MS Specialist and I’m not able to do anything to help you as it is beyond my realm of experience.”

I went back to my neurologist and told him what the urologist said. He said “Get a second opinion, he’s wrong. MS doesn’t affect the bladder.” So I took his advice and got a referral for a neurologist at the Shepherd MS Center in Atlanta, Georgia. It’s a 1 hour and 45 minute drive (depending on the traffic) but it’s so worth it. Seeing a neurologist that only deals with MS has been a game changer for me. I was referred to a urologist there too that understands the way MS affects the bladder.

Sometimes you have to be your own advocate. It is never a good idea to stay under a physician’s care that you know, by doing your own research, is misinformed.

I learned a long time ago the wisest thing I can do is be on my own side, be an advocate for myself and others like me. - Maya Angelou 

Karen

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